Juliana Steffan's mother, April Steffan, created a YouTube video about Prader-Willi syndrome, a rare genetic disorder that causes a chronic feeling of hunger, among other physical, mental and ...
Anna Hankins has a dynasty going at the Mississippi Miss Amazing beauty pageant. The 15-year-old has now won the state title three times, and plans to compete at the national pageant this summer in ...
PENNSAUKEN — A local teenager has died after a life-long battle against a rare disorder. Alexander Tran, 17, was looking forward to graduation next year from Pennsauken High School student, his family ...
A 5-year-old girl weighs 98 pounds due to a rare condition that constantly leaves her hungry for more food. Mom Holly Williams, 25, from the United Kingdom, has resorted to putting a baby gate in the ...
A new PDUFA target action date of March 27, 2025 has been set for the application. The Food and Drug Administration (FDA) has extended the review period for the New Drug Application (NDA) for ...
Pitolisant is currently marketed under the brand name Wakix and is approved to treat EDS or cataplexy in adults with narcolepsy. The Food and Drug Administration (FDA) has granted Orphan Drug ...
WWII Navy veteran Ira 'Ike' Schab, one of last remaining Pearl Harbor survivors, dies at 105 ...
Soleno Therapeutics, Inc. announced its participation in the 2025 United In Hope: International Prader-Willi Syndrome Conference, scheduled for June 24-28, 2025, in Phoenix, AZ. The company will ...
Certain rare genetic disorders may cause a child to develop obesity. Health experts may refer to these conditions as syndromic childhood obesity. They may affect a child’s metabolism or cause them to ...
Adam Feuerstein is a senior writer and biotech columnist, reporting on the crossroads of drug development, business, Wall Street, and biotechnology. He is also a co-host of the weekly biotech podcast ...