Persistence, resilience, and strength of character can overcome many obstacles in life. Marlene Pryson, 86, probably one of the oldest individuals living with cystic fibrosis, certainly possesses all ...

I remember the exact moment we realized Trikafta wasn’t the miracle drug we hoped it would be. Our 5-year-old daughter, Olivia, had become inconsolable and withdrawn, and was saying words that no ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

My name is Nikki Melchiorre. I am 27 years old and have cystic fibrosis. This is my story of being homeless. Having cystic fibrosis has taught me a lot medically, physically, spiritually, and even ...

For more than 25 years, people with cystic fibrosis and their loved ones have helped raise awareness, support, and understanding of CF in the United States through national recognition events. Today, ...

As a Latina mother of a child with cystic fibrosis, I aim to raise CF awareness and combat stigma in the Latino community by advocating for understanding, care, and support for families like mine. As ...

BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...

The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...

I’ve been a sleepy gal my whole life. If given the option to watch a movie or take a nap, I’ll choose the nap almost every time. I’m very sleep dependent. I don’t operate well if I don’t get good ...

Have you ever wondered if there was something else going on with you? Something else affecting you that you were not aware of? Well, I felt that way. Ever since I was young, I have always struggled ...

Our family’s journey has been a rollercoaster of challenges and triumphs since we welcomed our goofy boy, Owen, into the world. Now 20 months old, Owen’s life has already been marked by medical ...

A friend recently asked me how I became an expert on managing my personal expenses and medical bills. First and foremost, while I do not consider myself an expert, living with cystic fibrosis for 42 ...