I lived for decades struggling to breathe, adapting my life around what I thought were severe allergies. Then I was finally diagnosed with cystic fibrosis. With proper treatment and perseverance, I’ve ...

I was born in Germany, and when I was 6 months old, my mother flew me to Washington, D.C. where I was diagnosed with cystic fibrosis. Growing up, I went to school just like any other student, but of ...

I had an unexpected cystic fibrosis diagnosis at 31 and later learned that both of my children had CFTR-related disorder. What carried us through was individualized care and the unwavering support of ...

Although I’m of Indian origin, I was born in South Korea, a country I associate with wonderful natural beauty and amazing cuisine. My early life unfolded against the vibrant backdrop of cherry ...

As part of our mission to cure cystic fibrosis and ensure all people with CF can lead long, fulfilling lives, we support global research and clinical trials that could help bring novel therapies to ...

This blog contains content about an eating disorder. If you or someone you know has an eating disorder, contact the National Eating Disorders Association helpline by calling 1-800-931-2237.

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

When I tell people I’m training for a full Ironman competition, their reactions range from raised eyebrows to outright disbelief. It involves swimming 2.4 miles, biking 112 miles, then running a full ...

Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to maintain their health. BETHESDA, Md. (June 17, 2025) — The Senate ...

On behalf of the 272 undersigned organizations committed to the health of our nation’s mothers, infants, children, and families, we express our deep concern over the Administration’s recent decision ...

When my two children were diagnosed with CF, our lives were overtaken by treatments, hospital stays, and endless medications. The strain wasn’t just physical — it also deeply affected our mental ...