I would like to bring you back to 2016. It was a HOT summer day. Air conditioning was blasting in the car and I was listening to country music. I was on my way to work and drove past the emergency ...

When my daughter was first diagnosed with cystic fibrosis, the misinformation I found online only deepened my fears. But thanks to the guidance and compassion of our care team, I’ve realized life with ...

After undergoing an emergency double-lung transplant, I was heartbroken to learn that getting pregnant would no longer be a viable option for me. That moment marked the beginning of our ongoing ...

“He who does not know how to look back to where he came from will never get to his destination.” — Dr. José Rizal I was a 19-year-old Filipino American with cystic fibrosis when I recognized my duty ...

Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to maintain their health. BETHESDA, Md. (June 17, 2025) — The Senate ...

Hearing the words cystic fibrosis can be a lot for first-time parents — or any parent. In the fall of 2019, my husband David and I showed up for an OB-GYN appointment. I was about 11 weeks pregnant ...

For more than 25 years, people with cystic fibrosis and their loved ones have helped raise awareness, support, and understanding of CF in the United States through national recognition events. Today, ...

For many people, aging is an inevitable part of life, bringing with it the expected changes: wrinkles, slower metabolism, and the occasional creaky joint. But for those of us with cystic fibrosis, ...

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS. WASHINGTON, D.C. (March 6, 2025) — ...

I was labeled as different in school because I was always in the nurse's office, coughing, or eating like a pig. It all started in elementary school and still happens today, even though I am in ...

The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...