I was born in Germany, and when I was 6 months old, my mother flew me to Washington, D.C. where I was diagnosed with cystic fibrosis. Growing up, I went to school just like any other student, but of ...

I had an unexpected cystic fibrosis diagnosis at 31 and later learned that both of my children had CFTR-related disorder. What carried us through was individualized care and the unwavering support of ...

Although I’m of Indian origin, I was born in South Korea, a country I associate with wonderful natural beauty and amazing cuisine. My early life unfolded against the vibrant backdrop of cherry ...

As part of our mission to cure cystic fibrosis and ensure all people with CF can lead long, fulfilling lives, we support global research and clinical trials that could help bring novel therapies to ...

When you reach middle age, you start to realize that your body is beginning to break down. You wake up with a pain somewhere for no apparent reason that was never there before. You just don’t seem to ...

My family and I just made a huge move from Oklahoma to Oregon for my husband’s new job — our own Oregon Trail, but with meltdowns and caffeine instead of oxen and dysentery. Survival level: expert.

Jesus is a 37-year-old man who is proud to keep fighting against cystic fibrosis. Although he doesn't qualify for any modulators, he refuses to let that stop him from living life to the fullest. His ...

I remember the exact moment we realized Trikafta wasn’t the miracle drug we hoped it would be. Our 5-year-old daughter, Olivia, had become inconsolable and withdrawn, and was saying words that no ...

This blog contains content about an eating disorder. If you or someone you know has an eating disorder, contact the National Eating Disorders Association helpline by calling 1-800-931-2237.

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...