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TikTokbutterfly.child.3
Siblings Nur and Muhammad are often referred to as ‘butterfly children’ because their skin is as fragile as wings. They were born with a rare skin condition called epidermolysis bullosa. | SBS News
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2.5K views · 23 reactions | 300 million people live with a rare...
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Ewan has a very rare skin disease called Epidermolysis Bullosa (also known as EB or the Butterfly Disease). His skin is incredibly fragile - blistering or tearing easily at the slightest bit of friction. Ewan’s bandage changes was something that we had to get used to quite quickly after we left the hospital. And we had to figure out ways to keep him calm, because it could be quite painful. But he’s been a strong little guy from the start! 🤍 #epidermolysisbullosa #butterflydisease #ebawareness #
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