Waardenburg syndrome is a genetic condition that causes Coop’s deafness. But it also affects pigment in places like hair and eyes which is part of his beautiful blue! | Beth Leipholtz

8.9K views · 198 reactions | Rachel was diagnosed with Aicardi syndrome, a rare genetic malformation syndrome where part of the brain fails to form. Aicardi syndrome causes developmental delay, intellectual disability and frequent epileptic seizures. Rachel's quality of life has improved since neurosurgeons at Children's implanted a vagus nerve stimulation (VNS) device to reduce seizures. | Children's Minnesota | Facebook