Thank you to all our friends and followers for another amazing year! Praying 2026 will bring our family a new year of health and happiness and hopefully an improvement in seizures for our B (who is currently recovering from a 45 minute seizure this morning 😔). 2026 will be the year we hopefully kick Dravet Syndrome in the butt! #newyear #fyp #happy #2025 #dravetsyndrome
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Before I have people come after me, I need to start by saying I know she is not okay. I ask her this in the video, but I'm simply just trying to reassure her that I am there for her, I'm not leaving her alone. I record because the doctors need to see this, I cant possibly explain it, and she will no longer wear an EEG to record brain waves. She has been doing this more and more each night. When she goes into this you cannot hug her. She gets very aggressive. I was giving her juice when it starte
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Top performers are not calm because they “just don’t get nervous.” Many of them feel the same spike of adrenaline you do. The difference is they have tools. Practice, yes. Coaching, yes. But also medicinal support to keep their body from going into full-blown fight-or-flight in the spotlight. Kick’s beta-blockers are one of those tools. For qualified patients, they help blunt the physical symptoms of adrenaline so you can use all the preparation you have worked so hard for. That means a clear he
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